Friday 30 May 2008

Norfolk: Retired fireman loses battle for cancer drug

A retired fireman has suffered a setback in his battle to win funding for a cancer drug, reports the Eastern Daily Press.

Liver cancer patient Barry Humphrey has lost an appeal for a £5,000 trial for a drug aimed at buying him more time.

His upset wife Hazel says health bosses have “sentenced him to an early death” though their latest decision.

After 25 years service saving lives as a fireman in London, Mr Humphrey developed a rare cancer, triggered by hepatitis caught from a casualty during a rescue.

But officials at NHS Norfolk have decided not to fund treatment recommended by his consultant, saying Mr Humphrey's case fails to meet national cost-effectiveness guidelines on new drugs.

The couple, from Kimberley Road, are now seeing if there is anywhere else they can take their fight.

Funding the two-month trial treatment themselves was a last option - but they were reluctant having been told they would be opting out of the NHS, resulting in them having to pick up all treatment costs.

Fewer than 5% of liver cancer patients survive more than five years, so time is not on the Humphreys' side without some kind of treatment. And Barry says his consultants believe there are no other alternative drugs.

NHS Norfolk medical director Bryan Heap said treatment funding decisions were taken on clinical rather than social circumstances, so Mr Humphrey's past as an exemplary citizen unfortunately could not be taken into consideration.

The cost of Sorafenib, along with administration, extra scans and follow-up was £150,000 a year, and trials indicated an increase in life expectancy of 12 weeks, with no cure or reduction of symptoms.

Guidelines recommended not funding a new drug if the figure was greater than £30,000, he added.

North Norfolk MP Norman Lamb, the Liberal Democrats health spokesman who has been backing Mr Humphrey's battle, said he was “horrified” by the appeal refusal, and would be seeking to meet a senior official from NHS Norfolk to argue the case.

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